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Child Foundation Charity: For Children Born with treatable birth defects

Featured Child

Meet our Newest Child in need of surgery

Keidy

            

 

In partnership with Baptist Health South Florida, Child Foundation Charity will be providing 7 year old Keidy the opportunity to come from Colombia to the United States to have corrective surgery on her hands donated by renowned hand surgeon, Dr. M. Felix Freshwater.

Keidy was diagnosed with Apert syndrome which is a congenital disorder characterized by malformations of the skull, face, hands and feet.  Since the full extent of Keidy’s medical needs cannot be determined until she is evaluated by doctors at Baptist, we are hoping we will be able to do more than her hands.

With your donations Keidy’s quality of life will improve dramatically and be able to go back to Colombia at least being able to grasp objects for the very first time in her young life.

For Donations to Keidy's needs, click here: 

 

Felito

Update to be posted very soon, please check back for good news regarding his recent surgery

In partnership with International Kids Fund, and renowned Pediatric Neurosurgeon, Dr. John Rahgeb, Child Foundation Charity will be providing Felito the opportunity to have his congenital birth defect, known as Arnold Chiari Malformation II, operated on in Miami, FL in the upcoming weeks.

Please read below about Felito and learn how you can donate to help make his dreams come true, to live free from this debilitating pain and one day “kick a soccer ball”.

Felito was diagnosed with Arnold Chiari Malformation II, which means that the cerebella tonsils in the brain are too long and they stick through the opening in the skull. This creates an abnormal flow in the spinal fluid and creates pressure on the brain stem. He has also been diagnosed with syringomyelia and a number of tumors in his spinal cord. Syringomyelia is when a cyst or cavity forms within the spinal cord. These are terrible ailments for anyone and especially for a six-year-old child.

The pressure on the brain stem creates intense neurological pain and burning sensations all over the body. When his mom puts him to bed at night, he feels like he is lying on hot sheets. Sometimes he can't stand the feeling of clothes on his body, and even the slightest friction causes pain. The pressure inside his brain makes him constantly hear a loud droning noise, which causes his head to hurt and feel as though it's going to explode. He can't even swallow water because the pain in his throat is too much. Due to the pressure on his brain, his eyes don't function properly and they face sideways in opposite directions. Felito finds it difficult to walk and gets tired easily.

He would love to be able to kick a soccer ball one day. He dreams to grow up and study to be an engineer, as well as help other people who need an operation from the Chiari malformation. Lastly, Felito thanks God for his life and for the contributions you make so he can have his operation that will save his life.

Please donate to Child Foundation Charity today:

Or for donations to International Kids Fund for Felito:
Visit International Kids Fund website at www.internationalkidsfund.org

 

Khaleb needs a Sponsor -Please Help

Child Foundation Charity for Children

Khaleb pictured above with his Mother and his doctor, Dr. Bauer a CFC advisor.
This sweet little boy endures twice monthly infusions of a special enzyme replacement therapy. These infusions can run up to $2,000 per month. His family does not have insurance or means to cover the cost. CFC has been covering the cost of these twice monthly infusions since Oct 2007 as well as the cost of the surgery to put in a port for his comfort during these treatments.

Please consider sponsoring this little guy! He needs these infusions to correct his debilitating genetic birth defect.

By continuing these treatments Khaleb can lead a normal toddler life and his Mother can be comforted in knowing this therapy decreases liver and spleen size, reduces skeletal anomalies and successfully reverses other symptoms of the disorder, including abnormal blood counts. Since he was diagnosed early, the doctors are hopeful that by the time he is a teenager Khaleb's natural enzymes will manufacture by themselves and he will be free of Type 1, Gaucher's Disease.

This disease causes his liver and spleen to become enlarged, as you can see in his distended tummy above.

CFC has negotiated the best possible rates with Miami Children's Hospital, but the use of their facility and staff for each three hour infusion is almost $1,000 per treatment. Genzyme Therapeutics, the manufacturer of the enzyme has been most generous to donate this drug. With your donations CFC will be able to continue paying for the cost of these infusions.

If you would like to help Khaleb, please donate today or call our office to set up a sponsorship.


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