Can you help this sweet little boy and his family? They need to raise an additional $24,000 by September 2008.

Optic Nerve Hypoplasia is a congenital birth condition in which the optic nerve fails to develop normally, leading to blindness. One or both eyes may be affected. It relates to small or underdevelopment of the nerve, which transmits vision signals from the eye to the brain.

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Baby Miracle Tina Update, May 2008

Miracle Tina has had multiple rounds of surgeries and is now with her parents here in Miami recovering nicely. They are planning on returning to Samoa the end of May to a huge welcome home celebration.

On March 5th Child Foundation's board member, Dr. John Ragheb donated his expertise as a pediatric neurosurgeon and repaired the meningomyelcocoele (protrusion of the spinal membranes & spinal cord through a defect in the vertebral column). After this successful surgery of removing the very painful bulge, Miracle Tina was able to lay on her back for the very first time in her life.

On March 13th Child Foundation's board member, Dr. S. Anthony Wolfe donated his expertise as a pediatric plastic surgeon and repaired her bilateral cleft, ear tags, and amniotic band on her ankle. She now has two nostrils instead of three and her mouth no longer has the deformities attached and soon she will be eating normally. Removing the band on her ankle may allow her use of that foot.

Thanks to your most generous donations, Child Foundation Charity has been able to help give this darling little girl a better quality of life. She will be going home with her family to her beautiful island and to join more family and friends who will bring her much love and joy.

We will be receiving periodic updates so you can watch her develop and grow via our website.

This sweet little boy endures twice monthly infusions of a special enzyme replacement therapy. These infusions can run up to $2,000 per month. His family does not have insurance or means to cover the cost. CFC has been covering the cost of these twice monthly infusions since Oct 2007 as well as the cost of the surgery to put in a port for his comfort during these treatments.

Please consider sponsoring this little guy! He needs these infusions to correct his debilitating genetic birth defect.

By continuing these treatments Khaleb can lead a normal toddler life and his Mother can be comforted in knowing this therapy decreases liver and spleen size, reduces skeletal anomalies and successfully reverses other symptoms of the disorder, including abnormal blood counts. Since he was diagnosed early, the doctors are hopeful that by the time he is a teenager Khaleb's natural enzymes will manufacture by themselves and he will be free of Type 1, Gaucher's Disease.

CFC has negotiated the best possible rates with Miami Children's Hospital, but the use of their facility and staff for each three hour infusion is almost $1,000 per treatment. Genzyme Therapeutics, the manufacturer of the enzyme has been most generous to donate this drug. With your donations CFC will be able to continue paying for the cost of these infusions.

If you would like to help Khaleb, please donate today or call our office to set up a sponsorship.

 

Together with Child Foundation you can make a difference in an unfortunate childs life born with a birth defect. Stay up to date on the childrens progress via the website, www.childfoundation.com and be part of that childs recovery.

• 100% of your donation goes toward the childs surgery
• Stay up to date via ChildFoundation.com
• Send personal e-Cards via our website to the children
• All donations are tax deductible as allowed

We have partnered with Doctors across the county to provide special services to our children in need of surgery due to birth defects.

- View Children Awaiting Surgery »
- Donate to a Child via Child Foundation »